Patient Stories
80 patient stories
Megan Kirby Lance shares her dermatomyositis story
Meet Angela Diven: A Mother’s Unbreakable Love for Her Son with a Rare Bone Disorder
Meet Nika: Standing Up Against IgG4-RD
Meet Alex: Building a Life of Service
Meet Natalie Kelley: A UC Patient Determined to Help Others Put Their Best Foot Forward
Meet Kaitlyn Johnson: A UC Patient Embracing An Active Life
Meet Chris Laskey: Proud Father and Cancer Research Advocate
Meet Austin: Focusing on Faith, Family, and Medicine
Meet Rosa Yanez: A Tenacious MS Patient With a Deep Love for Her Community
Meet Alison Jakubcin: How One Doctor—and a Chance Encounter—Changed her RA Journey
Meet Ashley Calvento: Facing an Invisible Illness with Positivity and Strength
Meet Josie: Emphasizing Representation for the Disability Community
Meet Cindy: Coaching Patients Through an Incurable Disease
Meet Laura: Staying consistent amidst uncertainty
Meet Andrea: Empowering Others by Living Fearlessly
Meet Judy: Advocating, Parenting, and Living Large
Meet Megan: Prioritizing Community for People with Chronic Conditions
Meet Kevin: Navigating Two Invisible Illnesses
Meet Becky Post: Beating the Odds One Meal at a Time
Meet Jenny Jones: A Short Bowel Syndrome Patient Turned Advocate
Meet Sam: Using Her Hard-Fought Knowledge to Empower Others Living with Epilepsy
Meet Lindsay Guentzel: A multimedia journalist who became one of the first autoimmune patients in the US to receive CAR T-cell therapy for dermatomyositis and now uses her platform to advocate for rare disease research.
Meet Charlie Razook: Turning His Leukemia into Passion and Purpose
Meet Cheryl Airy: A Rare Lymphoma Journey Fueled by Grace, Grit, and a Village of Support