Patient Stories
80 patient stories
Diagnosed with myasthenia gravis at 18, Layla now navigates life with renewed purpose as a community manager and advocate through @sonriendoamedias.
Diagnosticada con miastenia gravis a los 18 años, Layla hoy comparte su experiencia mediante @sonriendoamedias y vive con propósito como community manager.
Diagnosed with epilepsy during her first pregnancy, Miki weathered two decades, another child, and brain surgery to become an advocate for the condition's overlooked realities.
From training five days a week to struggling to dress herself, Laura was only properly diagnosed with GPA once her mother stepped in to advocate for her.
A car going the wrong way gave Indie a brain injury, and the brain injury gave her epilepsy. She lost her license, her independence, and none of her plans.
Kari works in accounting, not medicine. One day she had to sit down at her computer and work out what was wrong with her son. She was right.
Meet Tamara: A Lupus Patient Who Turned Her Notebooks into a Planner for Others
Meet Bec Francis: A mom, health tech founder, and epilepsy patient who turned years of unanswered questions into Curalisys, a seizure tracking app that helps people find their own patterns.