Patient Stories

Meet Stefan: Overcoming His Past, Paving His Own Path

Meet Heather: Building A Family and A Sjögren's Community

Meet Jazmin: Highlighting Variations in Chronic Illnesses

Meet Gabrielle: Turning To Hope Despite Lupus Nephritis

Meet Garrett Taira: An SBS Patient Embracing Comedy, Film, and Dance

Meet Phil: Sailing the World with Epilepsy in Tow

Meet Alex Peebles: A SBS Patient Fighting for Representation

Meet Michele Norris: Turning a Lifetime of Health Challenges Into Advocacy

Meet Tracy Evans, an IgAN Patient Committed to Supporting Others and Raising Awareness

At 14, competitive swimmer Tia Chakrapani spent eight months being told her symptoms were anxiety or asthma. After finally receiving her myasthenia gravis diagnosis, she's now helping other young patients get the care and answers they deserve.

Meet Chase: Setting An Example For People Living With Rare Kidney Diseases

Meet Lisa: Navigating the Rollercoaster of Autoimmune Disorders

Meet Nicole Evans: Lifting Up Epilepsy Patients (and Lifting Weights)

Meet Shawna Barnes: An MG Patient Who Refuses to Falter

Meet Kathy: Reminiscing about her triumph over MDS

Meet Kathy Goebel: Navigating Severe Sudden-Onset Autoimmune Hepatitis

After feeling adrift without answers around his health, Tobias is a valuable resource for others coming to terms with a diagnosis of EoE

Melissa Kirkland went from holding everything together to not being able to hold a pan. Here's how a rare autoimmune condition called CIDP changed her life overnight — and why she's talking about it.

Mallory was sixteen when COVID quietly went after her kidneys. Here's how she made it from the cancer floor of a children's hospital to college, travel plans, and a pretty good life. One Mrs. Dash shaker at a time.

Abbie was thirty, with newborn twins and an infection that wouldn't quit, when one stubborn blood test caught a silent killer in her liver. Six and a half years later, she's living in Portugal, raising three boys, and crossing HYROX finish lines.

Carolyn Collins spent ten years collecting symptoms before anyone gave them a name. Here's how a string of beads from Walmart turned a decade of being unseen into a platform called Manifesting Stability.

At 19, Anees Rahman noticed a small lump below his knee and was told it was nothing. Months later it had grown into what he called "a second knee." A diagnosis of undifferentiated spindle cell sarcoma led to a rare 13-hour rotationplasty, five rounds of chemo, and a long road back. Five years on, he walks, runs, travels, and works as a designer. His story is about taking your body seriously, and about how much you can gain even after you lose.

Britt was thirty-four weeks pregnant when her hands and feet began to tingle. What followed was an emergency delivery, five months in the hospital, and an eight-month search for a diagnosis that finally had a name: CIDP. Three years later, she is standing again, and telling her story for the person who needs to hear that they are not alone.

Told for seven years that her bloodwork was normal, Victoria faced disbelief before being diagnosed with antibody-negative generalized myasthenia gravis.