Real people. Real impact.Patient stories. Discover how patients navigate rare and serious diseases with resilience, support, and hope—and how their voices are driving change for others. Explore by condition Search Sort by Featured order Newest first Oldest first A to Z Z to A Search Clear Condition Tag: Systemic Sclerosis×(remove this filter)Clear all Systemic Sclerosis From Swollen Hands to Locked Joints: How One Woman Fought a Rare Disease and Won Meet E. Rose Schubert: Refusing to Surrender to Her Diffuse Systemic Scleroderma Diagnosis Read E.’s Story Load More Stories Featured Story It became difficult to get caps off things, and I couldn’t even open a lip gloss. E. Rose Schubert Read E.’s Story Stay informed. Stay connected. Get the latest research updates, resources, and community news. Your email address *SubmitPlease do not fill in this field. By clicking submit, you consent to PatientWing contacting you in accordance with their Privacy Policy. You will be able to unsubscribe from PatientWing communications at any time.