Real people. Real impact.Patient stories.
Discover how patients navigate rare and serious diseases with resilience, support, and hope—and how their voices are driving change for others.
Explore by condition
Meet Megan Kirby Lance: Not Just Surviving, Thriving with Dermatomyositis
Meet Lindsay Guentzel: A multimedia journalist who became one of the first autoimmune patients in the US to receive CAR T-cell therapy for dermatomyositis and now uses her platform to advocate for rare disease research.
Featured Story
I’m a hairstylist and makeup artist, so when my hands became involved, I knew I couldn’t ignore it.
Megan Kirby Lance