Real people. Real impact.Patient stories.
Discover how patients navigate rare and serious diseases with resilience, support, and hope—and how their voices are driving change for others.
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Meet Andrea: Empowering Others by Living Fearlessly
At 14, competitive swimmer Tia Chakrapani spent eight months being told her symptoms were anxiety or asthma. After finally receiving her myasthenia gravis diagnosis, she's now helping other young patients get the care and answers they deserve.
Meet Shawna Barnes: An MG Patient Who Refuses to Falter
Told for seven years that her bloodwork was normal, Victoria faced disbelief before being diagnosed with antibody-negative generalized myasthenia gravis.
Diagnosed with myasthenia gravis at 18, Layla now navigates life with renewed purpose as a community manager and advocate through @sonriendoamedias.
Diagnosticada con miastenia gravis a los 18 años, Layla hoy comparte su experiencia mediante @sonriendoamedias y vive con propósito como community manager.
Kari works in accounting, not medicine. One day she had to sit down at her computer and work out what was wrong with her son. She was right.
Featured Story
I went skiing right before New Year’s and my vision was really blurry. We were in a snowstorm at the top of the mountain, so I was able to play that off.
Andrea DivisN avid volunteer and quilter