Real people. Real impact.Patient stories.

Discover how patients navigate rare and serious diseases with resilience, support, and hope—and how their voices are driving change for others.

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Dealing with the Invisibility of Epilepsy: Ashley Calvento
Meet Ashley Calvento: Facing an Invisible Illness with Positivity and Strength
Destigmatizing Epilepsy As A Children’s Book Author: Josie Martinez
Meet Josie: Emphasizing Representation for the Disability Community
Faith, Community, and Epilepsy: Megan Reynolds
Meet Megan: Prioritizing Community for People with Chronic Conditions
Fostering Self-Advocacy Through Catamenial Epilepsy: Sam Diann
Meet Sam: Using Her Hard-Fought Knowledge to Empower Others Living with Epilepsy
Overcoming Alcohol Abuse and Epilepsy: Stefan Rudolph
Meet Stefan: Overcoming His Past, Paving His Own Path
Sailing and Building Community: Phil Haydon
Meet Phil: Sailing the World with Epilepsy in Tow
Miki’s Story: The Pattern No Medication Could Crack
Diagnosed with epilepsy during her first pregnancy, Miki weathered two decades, another child, and brain surgery to become an advocate for the condition's overlooked realities.
Okay, What’s Next: Indie’s Epilepsy Story
A car going the wrong way gave Indie a brain injury, and the brain injury gave her epilepsy. She lost her license, her independence, and none of her plans.

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